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Humane Resources: Funding Restrictions in Rare Rheumatic Diseases
Rare Disease Clinical Development: The Crucial Need for Patient and Parent Involvement
Living with a rare disease: a husband and father’s perspective
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays.
We must act as England falls behind on access to rare disease medicines
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